Meg reminded me that my first chemo treatment was two weeks ago Saturday. Since then, it seems like a whirlwind has been blowing through the head with a rushing sound akin to a jet engine in my periphery.
As those two weeks were finished, I completed the first round of treatment and a chaotic rush to get blood and scanning tests to assess the current state. This week I have the entire week without treatment, assuming the average person needs the week of rest. As with most Myeloma patients, the first stage is predominately influenced by bone pain. In my case, I have, according to the Pet Scan significant cancer growth in the sternum, shoulder blades, thoracic vertebrae and the left femur. These are all places where I experience pain when moving, lifting or twisting. Pain management comes from a steady flow of Oxycontin. Funny how Oxy is so closely regulated for regular pain control, but those concerns seem to go out the window with cancer. I can ask for as many as I want. So I’m thinking of opening a drug store.
Finally, I take a steroid on Tuesdays and for the past two weeks an AFIB episode has shown up. We are exploring the possible connection but for the short term, I’m taking a low dose beta blocker to ward off the possibility of a stroke.
Today, Bob S who is a church member and a very bright guy went with Meg and me to the consult. He’s gathered several reading sites and has offered his expertise in cognitive mind/body integration as a mental toolbox in defeating the enemy within. He will also be very helpful when we need objective input regarding the possibility of stem-cell transplantation. We all left the meeting today sobered by the reality that the dreaded buggers have aggressively taken over the bones and plasma. Right now infections remain the threat because the clones (cancer) has crowded out the white blood cells and fighting stuff will be very difficult.
Now that the calcium production seems to be under control and the kidneys are doing a proper job of cleaning up the place, the questions revolve around healthy eating. I’m skeptical about cancer fighting diets for most have very little empirical evidence. But if something sounds interesting to me I’ve gone ahead and begun trying things. One such experiment is the “slow cook, bone roasting” methods. If you are in NYC and go the the swanky restaurant Canora, you can walk up to their outside service window and order a mason jar full of beef bone marrow broth for $5.00 or a take home quart for $16. These bones have been oven roasted for 24 hours and then cooked into a vegetable broth like the one I’ve done here: